Compreendendo a experiência de crianças e adolescentes submetidos à punção de medula óssea e lombar em centro cirúrgico de um hospital oncológico
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Data
2008-07-30
Autores
Oliveira, Fabene Etiane Silva [UNESP]
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Editor
Universidade Estadual Paulista (Unesp)
Resumo
altas probabilidades de cura, graças aos avanços da ciência e da tecnologia. Porém, quando este diagnóstico é dado a crianças ou adolescentes ele ainda gera desconfortos, devido ao impacto que esta doença pode causar no desenvolvimento destes indivíduos. Tanto a fase de diagnóstico, quanto as etapas do tratamento incluem a realização de procedimentos invasivos, bem como a utilização de drogas agressivas. O objetivo deste estudo foi compreender a experiência de crianças e adolescentes submetidos a procedimentos de punção de medula óssea e punção lombar realizadas em uma Unidade de Centro Cirúrgico de um Hospital Oncológico, sedadas antes da realização dos mesmos. Foi realizado um estudo qualitativo, utilizando-se o Discurso do Sujeito Coletivo (DSC) para a organização dos dados, e para análise dos resultados foi elaborado um Quadro Teórico. Foram entrevistados 15 sujeitos nos períodos pré e pós-procedimentos, na faixa etária de 7 a 14 anos de idade, procedentes de diversos Estados do Brasil. A maioria deles é do sexo masculino, com diagnóstico de Leucemia Linfoblástica Aguda (LLA). De acordo com os resultados foram construídos 18 DSC que revelaram, além de aspectos positivos quanto à importância da sedação antes da execução dos procedimentos, noções sobre o tratamento e a doença, assim como, satisfação pelo atendimento recebido, sentimentos como medo, ansiedade, devido ao tempo de espera na etapa do préprocedimento e insegurança quanto à cura. Foram reveladas também dificuldades quanto à realização do tratamento, como a dependência de transporte público, da rotina hospitalar, a separação da família, a distância da escola e dos amigos. Oferecer uma assistência tecnicamente diferenciada ainda é insuficiente para minimizar as adversidades enfrentadas por estes indivíduos e suas famílias...
Child cancer has presently been more often studied and better understood, and it is very likely to be cured as a result of scientific and technological advancement. However, when this diagnosis is given to children or adolescents, it still causes discomfort due to the impact that such disease can have on those individuals’ development. Both the diagnostic phase and the treatment period include the performance of invasive procedures as well as the use of aggressive drugs. This study aimed at understanding the experience of children and adolescents submitted to bone marrow puncture and lumbar puncture procedures, who had been sedated prior to such interventions, at the surgery unit of an oncology hospital. A qualitative study was carried out by using the Collective Subject Discourse (CSD) for data organization. In order to analyze the results, a Theoretical Chart was designed. Fifteen subjects from various Brazilian states at ages 7 to 14 were interviewed in the pre- and post-procedure periods. Most of them were males with an acute lymphoblastic leukemia diagnosis (ALL). According to the results, 18 CSD were constructed, which revealed, in addition to positive aspects concerning the importance of sedation prior to performing the procedure, notions related to the disease and its treatment, satisfaction concerning the care given, feelings such as anxiety due to the waiting time in the pre-procedure phase and insecurity in relation to being cured. Difficulties in treatment conduction, such as dependence on public transportation, hospital routine, separation from one’s family, distance from school and friends, were also revealed. Providing technically differentiated care is still insufficient to minimize the adversities faced by these individuals and their families. Re-structuring physical space and the service’s organization in order to further contribute to this clientele’s well-being is required.
Child cancer has presently been more often studied and better understood, and it is very likely to be cured as a result of scientific and technological advancement. However, when this diagnosis is given to children or adolescents, it still causes discomfort due to the impact that such disease can have on those individuals’ development. Both the diagnostic phase and the treatment period include the performance of invasive procedures as well as the use of aggressive drugs. This study aimed at understanding the experience of children and adolescents submitted to bone marrow puncture and lumbar puncture procedures, who had been sedated prior to such interventions, at the surgery unit of an oncology hospital. A qualitative study was carried out by using the Collective Subject Discourse (CSD) for data organization. In order to analyze the results, a Theoretical Chart was designed. Fifteen subjects from various Brazilian states at ages 7 to 14 were interviewed in the pre- and post-procedure periods. Most of them were males with an acute lymphoblastic leukemia diagnosis (ALL). According to the results, 18 CSD were constructed, which revealed, in addition to positive aspects concerning the importance of sedation prior to performing the procedure, notions related to the disease and its treatment, satisfaction concerning the care given, feelings such as anxiety due to the waiting time in the pre-procedure phase and insecurity in relation to being cured. Difficulties in treatment conduction, such as dependence on public transportation, hospital routine, separation from one’s family, distance from school and friends, were also revealed. Providing technically differentiated care is still insufficient to minimize the adversities faced by these individuals and their families. Re-structuring physical space and the service’s organization in order to further contribute to this clientele’s well-being is required.
Descrição
Palavras-chave
Enfermagem - Aspectos psicologicos, Enfermagem pediatrica, Transplante de medula óssea, Leucemia
Como citar
OLIVEIRA, Fabene Etiane Silva. Compreendendo a experiência de crianças e adolescentes submetidos à punção de medula óssea e lombar em centro cirúrgico de um hospital oncológico. 2008. 97 f. Dissertação (mestrado) - Universidade Estadual Paulista, Faculdade de Medicina de Botucatu, 2008.