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dc.contributor.authorFernandes, Taciana A. Pedrosa [UNESP]
dc.contributor.authorMagalhães, Claudia Saad [UNESP]
dc.contributor.authorOliveira, Sheila Knupp
dc.contributor.authorSztajnbok, Flavio
dc.contributor.authorde Oliveira Sato, Juliana [UNESP]
dc.contributor.authorDarze, Layla Saba
dc.contributor.authorde Almeida, Rozana Gasparello
dc.contributor.authorConsolaro, Alessandro
dc.contributor.authorBovis, Francesca
dc.contributor.authorRuperto, Nicolino
dc.date.accessioned2018-12-11T17:36:39Z
dc.date.available2018-12-11T17:36:39Z
dc.date.issued2018-04-01
dc.identifierhttp://dx.doi.org/10.1007/s00296-018-3936-1
dc.identifier.citationRheumatology International, v. 38, p. 59-66.
dc.identifier.issn1437-160X
dc.identifier.issn0172-8172
dc.identifier.urihttp://hdl.handle.net/11449/179762
dc.description.abstractThe Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Brazilian Portuguese language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 231 JIA patients (14.7% systemic, 43.3% oligoarticular, 22.5% RF negative polyarthritis, 19.5% other categories) and 72 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Brazilian Portuguese version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.en
dc.format.extent59-66
dc.language.isoeng
dc.relation.ispartofRheumatology International
dc.sourceScopus
dc.subjectDisease status
dc.subjectFunctional ability
dc.subjectHealth related quality of life
dc.subjectJAMAR
dc.subjectJuvenile idiopathic arthritis
dc.titleThe Brazilian Portuguese version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)en
dc.typeArtigo
dc.contributor.institutionUniversidade Estadual Paulista (UNESP)
dc.contributor.institutionUniversidade Federal do Rio de Janeiro (UFRJ)
dc.contributor.institutionNucleo de Estudos da Saúde do Adolescente
dc.contributor.institutionIstituto Giannina Gaslini
dc.contributor.institutionUniversità di Genova
dc.description.affiliationFaculdade de Medicina de Botucatu Universidade Estadual Paulista (UNESP)
dc.description.affiliationInstituto de Puericultura e Pediatria Martagão Gesteira (IPPMG) Universidade Federal do Rio de Janeiro
dc.description.affiliationHospital Universitário Pedro Ernesto Nucleo de Estudos da Saúde do Adolescente
dc.description.affiliationClinica Pediatrica e Reumatologia Paediatric Rheumatology International Trials Organisation (PRINTO) Istituto Giannina Gaslini, Via Gaslini, 5
dc.description.affiliationDipartimento di Pediatria Università di Genova
dc.description.affiliationUnespFaculdade de Medicina de Botucatu Universidade Estadual Paulista (UNESP)
dc.identifier.doi10.1007/s00296-018-3936-1
dc.rights.accessRightsAcesso aberto
dc.identifier.scopus2-s2.0-85045252962
dc.relation.ispartofsjr0,906
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