Proxy-reported health-related quality of life of patients with juvenile idiopathic arthritis: Pediatric rheumatology international trials organization multinational quality of life cohort study

Página do item simplificado
dc.contributor.authorOliveira, Sheila
dc.contributor.authorRavelli, Angelo
dc.contributor.authorPistorio, Angela
dc.contributor.authorCastell, Esteban
dc.contributor.authorMalattia, Clara
dc.contributor.authorPrieur, Anne Marie
dc.contributor.authorSaad-Magalhaes, Claudia
dc.contributor.authorMurray, Kevin J.
dc.contributor.authorBae, Sang-Cheol
dc.contributor.authorJoos, Rik
dc.contributor.authorFoeldvari, Ivan
dc.contributor.authorDuarte-Salazar, Carolina
dc.contributor.authorWulffraat, Nico
dc.contributor.authorLahdenne, Pekka
dc.contributor.authorDolezalova, Pavla
dc.contributor.authorde Inocencio, Jaime
dc.contributor.authorKanakoudi-Tsakalidou, Florence
dc.contributor.authorHofer, Michael
dc.contributor.authorNikishina, Irina
dc.contributor.authorOzdogan, Huri
dc.contributor.authorHashkes, Philip J.
dc.contributor.authorLandgraf, Jeanne M.
dc.contributor.authorMartini, Alberto
dc.contributor.authorRuperto, Nicolino
dc.contributor.institutionUniv Genoa
dc.contributor.institutionIRCCS G Gaslini
dc.contributor.institutionHop Necker Enfants Malad
dc.contributor.institutionUniversidade Estadual Paulista (Unesp)
dc.contributor.institutionPrincess Margaret Hosp Children
dc.contributor.institutionHanyang Univ
dc.contributor.institutionUniv Ziekenhuis Gent
dc.contributor.institutionAllgemeines Krankenhaus Eilbeck
dc.contributor.institutionInst Nacl Rehabil
dc.contributor.institutionWilhelmina Childrens Hosp
dc.contributor.institutionUniv Helsinki
dc.contributor.institutionFac Med 1
dc.contributor.institutionGen Fac Hosp
dc.contributor.institutionInst Madrileno Salud
dc.contributor.institutionAristotle Univ Thessaloniki
dc.contributor.institutionHop Univ Geneva
dc.contributor.institutionRAMS
dc.contributor.institutionCerrahpasa Tip Fak
dc.contributor.institutionCleveland Clin Fdn
dc.contributor.institutionHealthActCHQ
dc.date.accessioned2014-05-20T15:29:57Z
dc.date.available2014-05-20T15:29:57Z
dc.date.issued2007-02-15
dc.description.abstractObjective. To investigate the proxy-reported health-related quality of life (HRQOL) and its determinants in patients with juvenile idiopathic arthritis (JIA).Methods. In this multinational, multicenter, cross-sectional study, HRQOL of patients with JIA was assessed through the Child Health Questionnaire (CHQ) and was compared with that of healthy children of similar age from the same geographic area. of joint inflammation, Childhood Health Assessment Questionnaire (CHAQ), and erythrocyte sedimentation rate.Results. A total of 6,639 participants (3,324 with JIA and 3,315 healthy) were enrolled from 32 countries. The mean SD physical and psychosocial summary scores of the CHQ were significantly lower in patients with JIA than in healthy children (physical: 44.5 +/- 10.6 versus 54.6 +/- 4.0, P < 0.0001; psychosocial: 47.6 +/- 8.7 versus 51.9 +/- 7.59 P < 0.0001), with the physical well-being domain being most impaired. Patients with persistent oligoarthritis had better HRQOL compared with other subtypes, whereas HRQOL was similar across patients with systemic arthritis, polyarthritis, and extended oligoarthritis. A CHAQ score > 1 and a pain intensity rating > 3.4 cm on a 10-cm visual analog scale were the strongest determinants of poorer HRQOL in the physical and psychosocial domains, respectively.Conclusion. We found that patients with JIA have a significant impairment of their HRQOL compared with healthy peers, particularly in the physical domain. Physical well-being was mostly affected by the level of functional impairment, whereas the intensity of pain had the greatest influence on psychosocial health.en
dc.description.affiliationUniv Genoa, Pediat Rheumatol Int Trials Org, IRCCS G Gaslini, I-16147 Genoa, Italy
dc.description.affiliationIRCCS G Gaslini, Serv Epidemiol & Biostat, Genoa, Italy
dc.description.affiliationHop Necker Enfants Malad, Paris, France
dc.description.affiliationUniv Estadual Paulista, Botucatu, SP, Brazil
dc.description.affiliationPrincess Margaret Hosp Children, Perth, WA, Australia
dc.description.affiliationHanyang Univ, Med Ctr, Hosp Rheumat Dis, Seoul 133791, South Korea
dc.description.affiliationUniv Ziekenhuis Gent, Ctr Kinderreumatol, Ghent, Belgium
dc.description.affiliationAllgemeines Krankenhaus Eilbeck, Hamburg, Germany
dc.description.affiliationInst Nacl Rehabil, Mexico City, DF, Mexico
dc.description.affiliationWilhelmina Childrens Hosp, Utrecht, Netherlands
dc.description.affiliationUniv Helsinki, Cent Hosp, Hosp Children & Adolescents, Helsinki, Finland
dc.description.affiliationFac Med 1, Prague, Czech Republic
dc.description.affiliationGen Fac Hosp, Prague, Czech Republic
dc.description.affiliationInst Madrileno Salud, Madrid, Spain
dc.description.affiliationAristotle Univ Thessaloniki, Ippokration Gen Hosp, Thessaloniki, Greece
dc.description.affiliationHop Univ Geneva, Geneva, Switzerland
dc.description.affiliationRAMS, Inst Rheumatol, Moscow, Russia
dc.description.affiliationCerrahpasa Tip Fak, Istanbul, Turkey
dc.description.affiliationCleveland Clin Fdn, Cleveland, OH 44195 USA
dc.description.affiliationHealthActCHQ, Boston, MA USA
dc.description.affiliationUniv Genoa, IRCCS G Gaslini, Genoa, Italy
dc.description.affiliationUnespUniv Estadual Paulista, Botucatu, SP, Brazil
dc.format.extent35-43
dc.identifierhttp://dx.doi.org/10.1002/art.22473
dc.identifier.citationArthritis & Rheumatism-arthritis Care & Research. Hoboken: Wiley-liss, v. 57, n. 1, p. 35-43, 2007.
dc.identifier.doi10.1002/art.22473
dc.identifier.fileWOS000244138100006.pdf
dc.identifier.issn0004-3591
dc.identifier.lattes7098310008371632
dc.identifier.orcid0000-0002-7631-7093
dc.identifier.urihttp://hdl.handle.net/11449/39410
dc.identifier.wosWOS:000244138100006
dc.language.isoeng
dc.publisherWiley-Blackwell
dc.relation.ispartofArthritis & Rheumatism-arthritis Care & Research
dc.rights.accessRightsAcesso aberto
dc.sourceWeb of Science
dc.subjecthealth-related quality of lifept
dc.subjectjuvenile idiopathic arthritispt
dc.subjectdisabilitypt
dc.titleProxy-reported health-related quality of life of patients with juvenile idiopathic arthritis: Pediatric rheumatology international trials organization multinational quality of life cohort studyen
dc.typeArtigo
dcterms.licensehttp://olabout.wiley.com/WileyCDA/Section/id-406071.html
dcterms.rightsHolderWiley-Blackwell
unesp.author.lattes7098310008371632[7]
unesp.author.orcid0000-0003-4658-1093[9]
unesp.author.orcid0000-0001-8375-661X[15]
unesp.author.orcid0000-0002-2426-716X[1]
unesp.author.orcid0000-0001-9658-0385[2]
unesp.author.orcid0000-0002-0438-0245[16]
unesp.author.orcid0000-0002-7631-7093[7]
unesp.campusUniversidade Estadual Paulista (Unesp), Faculdade de Medicina, Botucatupt

Arquivos

Pacote Original
Agora exibindo 1 - 1 de 1
Imagem de Miniatura
Nome:
WOS000244138100006.pdf
Tamanho:
154.5 KB
Formato:
Adobe Portable Document Format
Baixar
Licença do Pacote
Agora exibindo 1 - 1 de 1
Nenhuma Miniatura disponível
Nome:
license.txt
Tamanho:
1.71 KB
Formato:
Item-specific license agreed upon to submission
Descrição:

Coleções

Artigos - Pediatria - FMB