Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life

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dc.contributor.authorEdvardsson, David
dc.contributor.authorBaxter, Rebecca
dc.contributor.authorCorneliusson, Laura
dc.contributor.authorAnderson, Ruth A.
dc.contributor.authorBeeber, Anna
dc.contributor.authorBoas, Paulo Villas [UNESP]
dc.contributor.authorCorazzini, Kirsten
dc.contributor.authorGordon, Adam L.
dc.contributor.authorHanratty, Barbara
dc.contributor.authorJacinto, Alessandro [UNESP]
dc.contributor.authorLepore, Michael
dc.contributor.authorLeung, Angela Y. M.
dc.contributor.authorMcGilton, Katherine S.
dc.contributor.authorMeyer, Julienne
dc.contributor.authorSchols, Jos M. G. A.
dc.contributor.authorSchwartz, Lindsay
dc.contributor.authorShepherd, Victoria
dc.contributor.authorSkoldunger, Anders
dc.contributor.authorThompson, Roy
dc.contributor.authorToles, Mark
dc.contributor.authorWachholz, Patrick [UNESP]
dc.contributor.authorWang, Jing
dc.contributor.authorWu, Bei
dc.contributor.authorZuniga, Franziska
dc.contributor.institutionUmea Univ
dc.contributor.institutionLa Trobe Univ
dc.contributor.institutionUniv N Carolina
dc.contributor.institutionUniversidade Estadual Paulista (Unesp)
dc.contributor.institutionDuke Univ
dc.contributor.institutionUniv Nottingham
dc.contributor.institutionNewcastle Univ
dc.contributor.institutionRTI Int
dc.contributor.institutionHong Kong Polytech Univ
dc.contributor.institutionToronto Rehabil Inst UHN
dc.contributor.institutionCity Univ London
dc.contributor.institutionMaastricht Univ
dc.contributor.institutionAmer Hlth Care Assoc
dc.contributor.institutionCardiff Univ
dc.contributor.institutionKarolinska Inst
dc.contributor.institutionNYU
dc.contributor.institutionUniv Basel
dc.date.accessioned2019-10-04T12:14:39Z
dc.date.available2019-10-04T12:14:39Z
dc.date.issued2019-05-08
dc.description.abstractTo support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models.en
dc.description.affiliationUmea Univ, Umea, Sweden
dc.description.affiliationLa Trobe Univ, Bundoora, Vic, Australia
dc.description.affiliationUniv N Carolina, Chapel Hill, NC 27515 USA
dc.description.affiliationSao Paulo State Univ, UNESP, Sao Paulo, Brazil
dc.description.affiliationDuke Univ, Durham, NC USA
dc.description.affiliationUniv Nottingham, Nottingham, England
dc.description.affiliationNewcastle Univ, Newcastle, England
dc.description.affiliationRTI Int, Washington, DC USA
dc.description.affiliationHong Kong Polytech Univ, Hong Kong, Peoples R China
dc.description.affiliationToronto Rehabil Inst UHN, Toronto, ON, Canada
dc.description.affiliationCity Univ London, London, England
dc.description.affiliationMaastricht Univ, Maastricht, Netherlands
dc.description.affiliationAmer Hlth Care Assoc, Natl Ctr Assisted Living, Washington, DC USA
dc.description.affiliationCardiff Univ, Cardiff, S Glam, Wales
dc.description.affiliationKarolinska Inst, Stockholm, Sweden
dc.description.affiliationNYU, New York, NY USA
dc.description.affiliationUniv Basel, Basel, Switzerland
dc.description.affiliationUnespSao Paulo State Univ, UNESP, Sao Paulo, Brazil
dc.format.extent1-15
dc.identifierhttp://dx.doi.org/10.1177/2333721419842672
dc.identifier.citationGerontology And Geriatric Medicine. Thousand Oaks: Sage Publications Inc, v. 5, p. 1-15, 2019.
dc.identifier.doi10.1177/2333721419842672
dc.identifier.urihttp://hdl.handle.net/11449/184571
dc.identifier.wosWOS:000475377200001
dc.language.isoeng
dc.publisherSage Publications Inc
dc.relation.ispartofGerontology And Geriatric Medicine
dc.rights.accessRightsAcesso restrito
dc.sourceWeb of Science
dc.subjectlong-term care
dc.subjectcare homes
dc.subjectmeasurement
dc.subjectpersonhood
dc.subjectquality of life
dc.subjectwell-being
dc.titleAdvancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Lifeen
dc.typeArtigo
dcterms.licensehttp://www.uk.sagepub.com/aboutus/openaccess.htm
dcterms.rightsHolderSage Publications Inc
unesp.author.orcid0000-0002-7117-4919[11]
unesp.author.orcid0000-0002-8844-4903[24]

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