Cross-cultural adaptation and validation for the Brazilian population of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life–Short Form (ALSSQOL-SF)

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dc.contributor.authorGayoso, Maisa Vitória [UNESP]
dc.contributor.authorDomingues, Flávia Seullner [UNESP]
dc.contributor.authorFrança Junior, Marcondes Cavalcante
dc.contributor.authorFelgoise, Stephanie H.
dc.contributor.authorOliveira, Acary Souza Bulle
dc.contributor.authorde Barros, Guilherme Antonio Moreira [UNESP]
dc.contributor.institutionUniversidade Estadual Paulista (Unesp)
dc.contributor.institutionUniversidade Estadual de Campinas (UNICAMP)
dc.contributor.institutionSchool of Professional & Applied Psychology
dc.contributor.institutionUniversidade de São Paulo (USP)
dc.date.accessioned2020-12-12T02:23:45Z
dc.date.available2020-12-12T02:23:45Z
dc.date.issued2020-03-01
dc.description.abstractObjective: This study aims to produce and validate the version of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life–Short Form (ALSSQOL-SF) into Portuguese, adapted to the Brazilian cultural context. Methodology: It is a cross-cultural adaptation and validation study, carried out in two Brazilian Public Universities, in the period from March, 2017, to November, 2018, according to the six steps guidelines of cultural and linguistic adaptation proposed by Beaton et al. (Spine 25(24):3186–3191, 2000). The World Health Organization Quality of Life (WHOQOL-BREF) and the Amyotrophic Lateral Sclerosis Functional Rating Scale Revised (ALSFRS-R) were used for perform the validation. In order to analyze the correlations between the ALSSQOL-SF, WHOQOL-BREF, and ALSFRS-R scores, Spearman’s correlation coefficients were calculated. The project was approved by the Research Ethics Committee of the two participating institutions. Result: All steps of the transcultural adaptation process were performed without intercurrence. The pilot test had the participation of 30 individuals, and the “Questionário Breve Específico de Qualidade de Vida para Pacientes com ELA (QVELA-20/Br)” tool was developed. During the validation phase, 100 patients were included, most of them were male (58%) with a median age of 59 years. The created version of the questionnaire are positively and strongly correlated with the WHOQOL-BREF and positively and weakly correlated with ALSFRS-R, as expected. Conclusion: The study produced and validated a version of the instrument ALSSQOL-SF into Portuguese that is adapted to the Brazilian cultural context.en
dc.description.affiliationAnesthesiology Department São Paulo State University (UNESP) Medical School, Av. Prof. Mário Rubens Guimarães Montenegro s/n
dc.description.affiliationNeurology Department University of Campinas (UNICAMP) Medical School
dc.description.affiliationDepartment of Clinical Psychology School of Professional & Applied Psychology
dc.description.affiliationDepartment of Neurology and Neurosurgery Federal University of São Paulo (UNIFESP) São Paulo School of Medicine
dc.description.affiliationUnespAnesthesiology Department São Paulo State University (UNESP) Medical School, Av. Prof. Mário Rubens Guimarães Montenegro s/n
dc.description.sponsorshipCoordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES)
dc.description.sponsorshipFundação de Amparo à Pesquisa do Estado de São Paulo (FAPESP)
dc.description.sponsorshipIdCAPES: 001
dc.description.sponsorshipIdFAPESP: 2016/22437-0
dc.format.extent805-813
dc.identifierhttp://dx.doi.org/10.1007/s11136-019-02342-2
dc.identifier.citationQuality of Life Research, v. 29, n. 3, p. 805-813, 2020.
dc.identifier.doi10.1007/s11136-019-02342-2
dc.identifier.issn1573-2649
dc.identifier.issn0962-9343
dc.identifier.scopus2-s2.0-85075908657
dc.identifier.urihttp://hdl.handle.net/11449/201088
dc.language.isoeng
dc.relation.ispartofQuality of Life Research
dc.sourceScopus
dc.subjectAmyotrophic lateral sclerosis
dc.subjectQuality of life
dc.subjectSurveys and questionnaires
dc.subjectTranslating
dc.subjectValidation studies
dc.titleCross-cultural adaptation and validation for the Brazilian population of the instrument Amyotrophic Lateral Sclerosis-Specific Quality of Life–Short Form (ALSSQOL-SF)en
dc.typeArtigo
unesp.author.orcid0000-0002-0869-9560[1]
unesp.author.orcid0000-0001-5248-1713[2]
unesp.author.orcid0000-0003-0898-2419[3]
unesp.author.orcid0000-0002-7471-0799[4]
unesp.author.orcid0000-0002-6986-4937[5]
unesp.author.orcid0000-0001-6421-353X[6]

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Artigos - Neurologia, Psicologia e Psiquiatria - FMB