Heart transplantation experiences: a phenomenological approach

dc.contributor.authorAraujo Sadala, Maria Lucia [UNESP]
dc.contributor.authorGroppo Stolf, Noedir Antonio
dc.contributor.institutionUniversidade Estadual Paulista (Unesp)
dc.contributor.institutionUniversidade de São Paulo (USP)
dc.date.accessioned2014-05-20T13:34:53Z
dc.date.available2014-05-20T13:34:53Z
dc.date.issued2008-07-01
dc.description.abstractAim. The aim of this study was to understand the heart transplantation experience based on patients' descriptions.Background. To patients with heart failure, heart transplantation represents a possibility to survive and improve their quality of life. Studies have shown that more quality of life is related to patients' increasing awareness and participation in the work of the healthcare team in the post-transplantation period. Deficient relationships between patients and healthcare providers result in lower compliance with the postoperative regimen.Method. A phenomenological approach was used to interview 26 patients who were heart transplant recipients. Patients were interviewed individually and asked this single question: What does the experience of being heart transplanted mean? Participants' descriptions were analysed using phenomenological reduction, analysis and interpretation.Results. Three categories emerged from data analysis: (i) the time lived by the heart recipient; (ii) donors, family and caregivers and (iii) reflections on the experience lived. Living after heart transplant means living in a complex situation: recipients are confronted with lifelong immunosuppressive therapy associated with many side-effects. Some felt healthy whereas others reported persistence of complications as well as the onset of other pathologies. However, all participants celebrated an improvement in quality of life. Health caregivers, their social and family support had been essential for their struggle. Participants realised that life after heart transplantation was a continuing process demanding support and structured follow-up for the rest of their lives.Conclusion. The findings suggest that each individual has unique experiences of the heart transplantation process. To go on living participants had to accept changes and adapt: to the organ change, to complications resulting from rejection of the organ, to lots of pills and food restrictions.Relevance to clinical practice. Stimulating a heart transplant patients spontaneous expression about what they are experiencing and granting them the actual status of the main character in their own story is important to their care.en
dc.description.affiliationSão Paulo State Univ UNESP, Med Sch Botucatu, Dept Nursing, BR-14802404 São Paulo, Brazil
dc.description.affiliationUniv São Paulo, Sch Med, Heart Inst InCor, Cardiac Transplantat Program,Surg Dept, São Paulo, Brazil
dc.description.affiliationUnespSão Paulo State Univ UNESP, Med Sch Botucatu, Dept Nursing, BR-14802404 São Paulo, Brazil
dc.format.extent217-225
dc.identifierhttp://dx.doi.org/10.1111/j.1365-2702.2007.02206.x
dc.identifier.citationJournal of Clinical Nursing. Hoboken: Wiley-blackwell, v. 17, n. 7B, p. 217-225, 2008.
dc.identifier.doi10.1111/j.1365-2702.2007.02206.x
dc.identifier.issn0962-1067
dc.identifier.urihttp://hdl.handle.net/11449/11969
dc.identifier.wosWOS:000256635300010
dc.language.isoeng
dc.publisherWiley-Blackwell
dc.relation.ispartofJournal of Clinical Nursing
dc.relation.ispartofjcr1.635
dc.relation.ispartofsjr0,760
dc.rights.accessRightsAcesso restrito
dc.sourceWeb of Science
dc.subjectchronic illnessen
dc.subjectheart transplantationen
dc.subjectnursesen
dc.subjectnursing careen
dc.subjectpatients' lived experienceen
dc.subjectphenomenologyen
dc.titleHeart transplantation experiences: a phenomenological approachen
dc.typeArtigo
dcterms.licensehttp://olabout.wiley.com/WileyCDA/Section/id-406071.html
dcterms.rightsHolderWiley-blackwell
unesp.campusUniversidade Estadual Paulista (Unesp), Faculdade de Medicina, Botucatupt
unesp.departmentEnfermagem - FMBpt

Arquivos

Licença do Pacote

Agora exibindo 1 - 2 de 2
Nenhuma Miniatura disponível
Nome:
license.txt
Tamanho:
1.71 KB
Formato:
Item-specific license agreed upon to submission
Descrição:
Nenhuma Miniatura disponível
Nome:
license.txt
Tamanho:
1.71 KB
Formato:
Item-specific license agreed upon to submission
Descrição: